I’m one year on in my time in the Sick Girls’ Club, feeling like the Final Girl of my own horror film.
My summer reading list, some of which will hit you right in the chronic illness feels and others just to inspire you or take you away from it all with an incredible story.
The idea of regulating my symptoms and trying to manage my disease with the input of others makes me extremely uncomfortable. It isn’t something that we talk about much, particularly in the vernacular of activism. Self-advocacy is key, self-care is the pinnacle. However, in the world sometimes those standards are shifted slightly. In an ideal world, compromise and fairness wouldn’t be a concern. I would be ill and because of that not-so-simple fact, I would be able to make the choices that preserve my health and say screw it to everything else. In my experience, however, I also factor in the fact that I am lucky enough to have the option of finding balance. Because of that, and in order to maintain this aspect of my life that is just as critical as my physical health, compromise is key. But where is the tipping point?
My hope for this blog is that you will find something relatable and that we can have a conversation about the culture of medicine that we rely on and are immersed in. Before I tell you more about why I chose to frame my blog around the notion of hysteria, I want to give a little more context for my own experience with chronic illness.