All tagged chronic fatigue syndrome

Fairness and Self-Care: Where is it Safe to Compromise?

The idea of regulating my symptoms and trying to manage my disease with the input of others makes me extremely uncomfortable. It isn’t something that we talk about much, particularly in the vernacular of activism. Self-advocacy is key, self-care is the pinnacle. However, in the world sometimes those standards are shifted slightly. In an ideal world, compromise and fairness wouldn’t be a concern. I would be ill and because of that not-so-simple fact, I would be able to make the choices that preserve my health and say screw it to everything else. In my experience, however, I also factor in the fact that I am lucky enough to have the option of finding balance. Because of that, and in order to maintain this aspect of my life that is just as critical as my physical health, compromise is key. But where is the tipping point?